Caitlin’s death from leukemia, on Tuesday,
December 28, 2004, came as a sudden and totally unexpected surprise
to us all. Caitlin was always a healthy and active girl, even as a
teenager. Leukemia was never a part of her life.
December 2004 started out like any other
December for our family -- busy. We were all caught up in getting
ready for the holidays. Caitlin had had pneumonia for Thanksgiving,
so she was also busy getting caught up on schoolwork she had missed.
I surprised Caitlin by picking her up from
school one afternoon. “Let’s go buy a Christmas tree!” Within
minutes of arriving at the tree lot, Caitlin had found the perfect
tree for us. That weekend, cousin John and his girl friend, April,
stopped by our house to help decorate the tree.
The next week Caitlin and her sisters, Kelsey
and Kristy, visited Santa at the mall--all three sat on Santa's lap
for a picture. On the 17th, Caitlin danced in her school’s annual
winter dance concert. She looked radiant. During the week before
Christmas, Caitlin spent her spare time making gifts for her friends
and distributing goodie bags to her teachers and bus driver.
On Tuesday, before Christmas, Caitlin went to
the dentist complaining of pains in her wisdom teeth. The only
solution was to remove her wisdom teeth -- surgery was scheduled for
the day before Christmas. All went well and Caitlin came home to
recuperate. Her face was swollen from the extraction and her mouth
was tender.
Caitlin was sleepy and sore on Christmas Day
(Saturday). John and April, along with Caitlin's grandparents and a
couple of other family friends, joined us for the day. We all had a
very nice Christmas together. Caitlin had difficulty eating and
drinking due to the teeth extraction and the medication which upset
her stomach. By late the next day (Sunday), Caitlin appeared to be
dehydrated. We called 911 and took her to the emergency room. The
early diagnosis was that Caitlin had a sepsis infection (pretty bad
stuff) and would need blood work. They decided to airlift Caitlin to
Johns Hopkins Hospital in Baltimore.
The doctor at Hopkins met with us and said that
Caitlin could have any of a number of things going on. After
additional blood work, acute promyelocytic leukemia (APL) was
diagnosed. The Oncologists met with us and said that this form of
leukemia was highly survivable. I spent the night at Caitlin's
bedside. Every time the doctors spoke with us about Caitlin's
condition and what they would do next, we shared that information
with Caitlin. She was aware of everything we told her. Throughout
the course of Monday, they worked on stabilizing Caitlin's
condition, striving to reach a point where they could begin treating
the leukemia. It was like a roller-coaster ride -- up and down and
up and down. Everything happened very quickly. Late in the afternoon
they took Caitlin to the OR to install a ventilator tube in her
airway (due to the swelling from her teeth extraction). They also
installed a dialysis machine to protect her kidneys from the strain
of the chemotherapy that was soon to begin (as leukemia cells die
they release toxins that go through the kidneys). Caitlin was
sedated from that point forward. Both procedures went well and the
expectation was that she would remain sedated throughout the night.
Marty (mom) and I (dad) went home to get some sleep so that we could
begin the next day fresh.
The hospital called us back shortly after we
arrived home. We hurried back and found a flurry of activity going
on around Caitlin. But soon after our return they had her
stabilized, again. The doctors and nurses went away and returned to
other patients. I helped bathe Caitlin. Marty went to get some sleep
while I sat in the waiting area. A short time later, they called us
back. This time they began administering CPR and manually pumping
oxygen. They worked as hard as was possible and refused to give up
-- they did not want to lose Caitlin any more than we did. Within 20
minutes it was all over.
Caitlin was unconscious during this time. The
final look on her face was one of peace, not pain. I immediately
offered myself to God in exchange for Caitlin but was told
"No." I quickly realized that Caitlin was now doing what
she spent her entire life longing to do -- she was flying. Marty and
I cried long and hard. Then we went home.
While we were with Caitlin at the hospital,
Kelsey and Kristy stayed with friends. We called them home to tell
them the news. As they walked in the front door they knew something
was wrong. We told them that Caitlin had died and then we all had a
long, hard cry. Later that day (still Tuesday), a friend drove Marty
and me to the funeral home to make final arrangements for Caitlin.
After I identified her body, I bent down, kissed Caitlin's forehead
and told her, "Good night. I love you. I'll see you in the
morning." I had always told Caitlin this same thing every night
as I tucked her into her bed.
We spent the remainder of Tuesday calling
friends and family to tell them of Caitlin's death. Marty's sister
and her daughter arrived on Wednesday to help us through the next
couple of days. Sleep did not come easily and food held no interest.
We were miserable. We met with our priest and planned a memorial
service for Caitlin -- a Celebration of Life -- to be held on
Friday, December 31, 2004 (New Year's Eve day).
Thursday night I sat talking with my brother. I
told him that I expected to be quite exhausted after the service the
next day and that I did not think I would be able to take Kelsey and
Kristy to go Cosmic Bowling for New Year's Eve (a family tradition).
Instantly two ornaments came flying off the Christmas tree (one
shaped like a heart). My brother and I looked at each other and I
knew I had to go bowling with Kelsey and Kristy. Caitlin's message
was clear!
The next day was sunny with a few clouds. We
arrived at the church and found quite a crowd. The church had
seating for three hundred. We learned, later, that at least four
hundred people had attended the service -- some of whom had to stand
in the hallway and even a few in the parking lot.
The tone of the service was very positive.
Marty and I were the first two speakers. Marty quoted one of
Caitlin's favorite lines from the movie, Annie -- "the
sun will come out tomorrow." During my time I said that I can
see her whenever I look up into the sky. She is in the clouds as
they go racing about. She is there playing peek-a-boo with me when
the sun ducks in and out of the clouds.
Several of Caitlin's friends also shared
memories of her. From them it was clear that Caitlin had been a dear
friend to each of them and to many others not present. Caitlin's
pre-school teacher related a story of Caitlin's caring nature. The
father of one of Caitlin's friends and the mother of one of Kelsey's
friends each shared their positive memories of Caitlin and her
relationship to their daughters.
Afterwards, Marty and I talked with as many
people as we could for three hours. Many people said they felt
uplifted by the service. They were going home to hug their children
and reassess their lives. We were exhausted but felt at peace. That
night, I took Kelsey and Kristy Cosmic Bowling. Caitlin’s spirit
was with us as we bowled -- Kelsey and Kristy had a great time. The
many friends and family with us that night felt Caitlin's presence
as well.
We are very thankful for the time we had with
Caitlin. Her life, though short (15¾ years), was both full and
rich. We have no regrets about the life Caitlin shared with us. We
love her now as much as we ever have and will continue to love her
for the remainder of our lives. We miss her very much. We have been
blessed with the ongoing love, prayers, and support from our family,
friends, and the community at large. Thank you all.
